Picture: Luke and Rachel Watson

The Luke & Rachel Batten Foundation

 

     The Luke & Rachel Batten Foundation was formed in honor of Luke and Rachel Watson. They, along with thousands of other children in our country and around the world, are afflicted with a fatal degenerative neurological disease called Batten Disease. Batten Disease (neuronal ceroid lipofuscinosis) is the most common degenerative brain disease in children. This merciless disease has caused Luke & Rachel to go blind, have seizures, and regress in skills they had once mastered. Every day they struggle to do normal daily activities. Children who once ran and played, are now requiring constant help with routine tasks. Their future will consist of seizures, loss of motor control, loss of speech, as well as loss of the ability to think and reason coherently. They will end up bedridden and will require a feeding tube for nourishment. The average child with Batten Disease will not live past their teenage years. It’s heart breaking to see these precious children struggle and suffer so much. We are desperately searching for a treatment and cure.

The Luke & Rachel Batten Foundation has found a team of doctors who are willing and able to focus on finding a cure for this terrible disease. With our help they have formulated a plan to accomplish this goal. Money is needed to fund this research. Please help us. We need major financial assistance from those who want to make a difference. Supporters have the opportunity to save these children's lives and advance medical science. The sooner the Foundation can obtain the funding the more lives will be saved. If you want to help do something that has immediate impact, please contact us.

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