RESEARCH:
- An article published by the University of Rochester Medical Center cited the Foundation as a contributor to the Batten's research effort. Please give it a read as we were very excited to see the work towards a cure for Batten's move forward: Understanding How the Cellular "Garbage Disposal" Grinds to a Halt to Cause Rare, Fatal Childhood Disease

-The Foundation recently funded a fulltime researcher with Dr. Pearce at Rochester University for two years. We now have a someone working exclusively on Juvenile Batten Disease.

- An article published by Proceedings of the National Academy of Sciences in December 2003 cited the Foundation as a contributor to the Batten's research effort. A Role in Vacuolar Arginine Transport for Yeast Btn1p and for Human CLN3, the Protein Defective in Batten disease 

EDUCATION:
-Worked with Publicist Lisa Smith to help in educating the public to our cause. We have since done an interview on a nationally syndicated Radio Show and a television interview with the local CBS affiliate in College Station.

FUND RAISING:
- We are now able to accept Visa and Mastercard on via our website. Look for other cards in the future.

-Established an annual Golf Tournament, the first of which was held at Great Hills  Country Club in Austin, TX. The Golf Tournament was a rousing success thanks to our group of hard working volunteers.

-Setup a luncheon with Coach Gene Stallings as Guest Speaker. The Luncheon was well attended and allowed the Foundation to have a very successful event for our first fundraiser. Gene Stallings motivated all in attendance to step up and "do something."

 See the Fundraiser page for more information on previous fundraisers.